WHO ARE YOU: LIVING WITH ASPERGERS

WHO ARE YOU

Living with Autism
"The autism bomb hits the mark, and life is never the same again for the person on the autism spectrum or for the family members, educators, doctors and others who provide support."
Learn More about Living with Autism.

Living with Asperger's
"It was right then that I got the diagnosis. It explained everything; why I was good at certain things and completely oblivious to others. What I try to do now is not limit myself because of my Asperger’s, because I actually think my Asperger’s was responsible for the ‘good things’ I have done in my life as well as a whole lot of embarrassing things."
Learn More
about Living with Asperger's.

Parent or Caregiver
"We no longer fight against our son’s differences but embrace them and this way of loving has even taught us to how better accept and love each other as a couple. We still have a long way to go and even more to learn, but I now know that hope has no limit unless I place it there." Learn More.

Professional
"Let's experience what their life is like for a day. Our children are in pretty much of a constant state of overload. Your living room is like LAX [Los Angeles International Airport] to your child. They can't recognize patterns the same way we can, so everything that seems predictable and understandable to you and I seems totally unpredictable to our children." Learn more.

Educator
"When you follow a child's lead, you join him or her in the inner world. This willingness to join children where they are becomes a shared experience based on mutual trust and opens the door for the child to join your world. Entering the world of the child with autism requires an open mind. You need to leave behind any expectations about how it should go. Learn more.

Grandparent or Relative
"When a child is diagnosed with an autism spectrum disorder (ASD), the impact is felt beyond the nuclear family. Grandparents, too, cope with grief, search for answers, and try to define their role in this new situation." Learn More.

Advocate
I was told by a state representative that they are terrified by the subject of autism, because it is not quantifiable, not qualifiable, and we can't give them an exact number on how to cure it, solve it, fix it or anything. They don't want to touch it with a ten foot pole. Well, he said that to the wrong person." Learn more.

Member
Our mission: to Provide the Opportunity for everyone with autism spectrum disorders to achieve their fullest potential, by enriching the autism community with education, training, accessible resources, and partnerships with local and national projects. Support from members provide resources to make this possible. Join now and receive discounts from our sponsors and receive a discount on registration for our annual conference. Learn more.

Volunteer
US Autism & Asperger Association looks to volunteers for conference registration, coordination of presentations, special fundraising events, and other projects. Your support enhances the quality of life of individuals and their families and caregivers touched by autism spectrum disorders. Learn more.

Who we are
US Autism & Asperger Association (USAAA) is a 501(c)(3) nonprofit organization for Autism and Asperger education, support, and solutions. Our mission: to Provide the Opportunity for everyone with autism spectrum disorders to achieve their fullest potential, by enriching the autism community with education, training, accessible resources, and partnerships with local and national projects. Learn more.


Click on the links below to learn more about the following: Living with Autism, Living with Asperger's, Parent or Caregiver, Professional, Educator, Grandparent or Relative, Advocate, Member, Volunteer, Who we are.

WHO ARE YOU: LIVING WITH ASPERGERS

Living with Aspergers

Tim Page - "Before I was diagnosed [with Asperger’s ] at the age of forty-five, I looked on my life as this narrative of a completely confused distraught kid who suddenly got energy in his early twenties and was able to do a number of things. Before my diagnosis, but after winning my Pulitzer Prize, after doing a lot of different books, I decided I was all well and took a job running an orchestra [the St. Louis Symphony]. It was a disaster. I went back to being seven or eight years old. I’d have to deal with a hundred different musicians and be polite to people at Board meetings when they said we should put Bolero on every program because we would have sellouts every night. It was impossible and I just collapsed. I just did such a wretched job. I said I am just terrible at this and you need to leave me alone. I went back to the Washington Post and I started to realize that the reason I had done well was that I was accommodating myself to my own needs. It was right then that I got the diagnosis. It explained everything; why I was good at certain things and completely oblivious to others. What I try to do now is not limit myself because of my Asperger’s, because I actually think my Asperger’s was responsible for the ‘good things’ I have done in my life as well as a whole lot of embarrassing things."

Tim Page is the author of Parallel Play, an autobiographical account of "Growing up with Undiagnosed Asperger's". He was diagnosed with Asperger's Syndrome as an adult. He is a professor at both the Thornton School of Music and the Annenberg School for Communication and Journalism at the University of Southern California.

Page won the Pulitzer Prize for criticism in 1997 for his writings about music in The Washington Post, where he has held the position of chief classical music critic since 1995. Prior to coming to the Post, he served as the chief music critic for Newsday and as a music and cultural writer for The New York Times. During his years in New York, he was the host of an afternoon program on WNYC-FM that broadcast interviews with hundreds of composers and musicians, including Aaron Copland, Virgil Thomson, Dizzy Gillespie, Philip Glass, Meredith Monk and Steve Reich. An interview with Glenn Gould, comparing the pianist's two versions of Bach's Goldberg Variations, was released as part of a three-CD set entitled A State of Wonder in 2002 that became a surprise best-seller.

Page has produced concerts at venues ranging from Carnegie Hall to New York's once-infamous Mudd Club. From 1999 to 2001, he was the artistic advisor and creative chair for the St. Louis Symphony Orchestra.

His books include The Glenn Gould Reader (Alfred A. Knopf, 1984), Selected Letters of Virgil Thomson (Summit, 1988), William Kapell: A Documentary Life History of the American Pianist (IPAM, 1992), Music From The Road: Views and Reviews 1978 - 1992, an anthology of previously published work (Oxford University Press, 1992), The Unknown Sigrid Undset (Steerforth, 2001), and Tim Page on Music (Amadeus Press, 2002).

Tim Page has presented at the USAAA World Conferences since 2011. Tim Page serves on the US Autism & Asperger Association advisory board.


Charisse Byrd - "Being in a relationship with someone who is also on the spectrum has its serious advantages, but challenges are a normal part of everything. I am very analytical of words being spoken to me and sometimes I will take what she (or anyone) says so literally that it changes the initial route of the conversation. Being very sensitive people, if the conversation gets emotional it is sometimes hard to decipher where we got turned around or miscommunicated because we run on very high emotion, (believe it or not!). When that happens, we usually need to take a step back, have some quiet time to gather our thoughts and words because sometimes they just don't come out right if at all. After the inertia of the emotions slow down a bit we are always able to talk about it, analyze it and come to an understanding. I am happy to say that we have a very wonderful relationship and we are aware that miscommunications do and will happen. We continue to work out the troubleshooting of verbal communication between ourselves with each other's unfailing support.

Charisse Byrd was diagnosed with Asperger's Syndrome in February, 2011. She had referred herself in for the assessment after seeing herself almost perfectly described in the first chapter in a book about Asperger’s Syndrome.  She has always felt different from others. "I have odd conversational structure and it is hard for me to keep up with the ebb and flow of verbal communication. I was considered a behavioral problem throughout school and home life. I was also very sensitive and prone to meltdowns.  Throughout all of their confusion (and mine) about my idiosyncrasies, I still managed to score very high on aptitude tests in my school career."

Charisse is the mother of a three year old son and has a partner/wife, both of whom are on the autism spectrum. They co-own a farm along with Charisse's mother and raise goats, llamas, ducks, geese, and chickens.

Charisse commented in 2011 that "I am in the midst of starting my own business that sells all natural, handmade (by me) soap and other products that are skin and nose friendly, geared toward but not limited to the more sensitive people out there."

Click on the links below to learn more about the following: Living with Autism, Living with Asperger's, Parent or Caregiver, Professional, Educator, Grandparent or Relative, Advocate, Member, Volunteer, Who we are.